8 Great ALS Blogs and Resources

Here's our (by no means complete) list of ALS related links to learn more about ALS and connect with the large, active online ALS community. If we missed any great sites, post a link in the comments and we'll add it to our list.

Kids Health ALS Page - Okay so yes this is technically for kids. But if you are learning about ALS or trying to understand how it works with little or no prior knowledge, it's a good starting point.

ALS forums - This is a great support blog for people with ALS and their close families and relatives. There are a lot of people telling their stories about daily living with ALS.

ALS Association - The ALSA is a non-profit supporting research into treatments and a cure for ALS. ALSA.org provides resources for finding local chapters of the group for support, information and news about ALS, links to ALS studies and more for healthcare professionals, and opportunities to get involved in the fight against ALS. You can also connect to the cause on Facebook, Twitter, MySpace, and Youtube.

Focus on ALS Awareness - A full spectrum of ALS resources including information about the disease, coping with a diagnosis, products and information about living with ALS, inspiration quotes and stories, and links to more resources and information.

ALS Therapy Development Institute - A non-profit research group aggressively pursuing treatments and cures for ALS. The site explains the research, hosts a community forum, and has links for other ways to get involved in defeating ALS.

MDA-ALS The MDA - (Muscular Dystrophy Association) website has a special section specifically for ALS. The page includes link to advocacy, support groups, research and clinical trials, and ALS-related media (art, publications, etc).

The Packard Center for ALS Research at Johns Hopkins - On the techie side of ALS sites is the alscenter.org. This site has facts about ALS, coping, getting involved in fighting the disease, and a lot of information about the research they are doing to find a cure for ALS.

Les Turner ALS Foundation - A site for the one of the largest independent ALS organizations. The site was founded by Les Turner and his friends and family after he was diagnosed in 1976. The site highlights ALS research, services and events for PALS and their families, and information about the disease.

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[Tracy Boettcher]

Please review my blog about my experiences as an ALS sufferer. als-whaticantellyou.blogspot.com